A case study of three mothers of children with autism undergoing early intensive behavior intervention

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dc.description학위논문 (석사)-- 서울대학교 대학원 : 생활과학대학 아동가족학과, 2018. 2. 박혜준.-
dc.description.abstractAlthough the stigma and discrimination against individuals with disabilities are still ongoing concerns in South Korea, the demand for special education services has continued to increase. Early Intensive Behavioral Intervention, known as EIBI, is often referred to as the most scientific and effective approach to significantly establish and develop socially significant skills of children with ASD. To gain optimal results from the EIBI services, the role of parents is especially important in expanding childrens behaviors and skills that are learned in structured one-on-one therapy sessions. Without parent involvement in intervention, children with ASD may not be able to generalize these learned behaviors into larger or different settings. Although numerous studies examined the effect of the intervention on the individuals, only a few focused on how culture shapes the understanding and management of autism and EIBI within Korea context.
The overarching aim of this study is to look into the lives of families of children with ASD and how they experience the child's disability. As this study explores the lives of families undergoing EIBI, I examined their lives within EIBI context.

The research questions for the study are as follows.
1. How do parents perceive the child's disability and the
intervention process?
2. How do their perceptions on the disability and the
intervention process impacted intervention outcomes?

To conduct this study, three 3 years-old children with moderate to severe ASD, their mothers and EIBI therapists were recruited and selected by using purposeful sampling. Each family was visited three times when all family members were present, with the time of stay averaging 2.5 hours. Then main caregivers, who were all mothers, and therapists were all interviewed.
A thematic analysis followed through the collected interview data, observational data, assessment evaluation, centers evaluation of the childs performance and the mothers personal notes on the child. The result demonstrated that mothers acceptance of childs disability depended on the severity of childs symptoms. Mothers perceived that EIBI is a treatment approach to improve specific social and cognitive skills rather than a treatment to improve the overall development of the child. Moreover, since it was difficult for all the family members to participate in the intervention process, mothers implemented the behavior techniques alone in the house. As as result, all children with ASD in this study demonstrated generalization issues.
The findings can be used as a reference to professionals in South Korea who can support parents with their parenting knowledge, attitude and practice and EIBI professionals who can collaborate with families to implement early behavioral intervention.
dc.description.tableofcontentsI. Introduction 1
1. Background of the Study 1
2. Research Questions 3

II. Literature Review 4
1. Autism Spectrum Disorder: Definition and Diagnosis 4
2. Perceptions of Disability in Korean Culture 7
3. Early Intervention for Autism Spectrum Disorder 10

III. Methods 15
1. Overview 15
2. Researchers Perspectives 15
3. Participants 16
4. Procedures 19
5. Data Analysis 20

IV. Results 24
1. Hani & Hanas Family: mothers demand for social development 24
1) Characteristics of Hani and Hanas family 24
2) Mothers experiences with ASD and EIBI 31
3) Challenges of the child and the mother 34
2. Shins Family: mothers demand for school readiness 36
1) Characteristics of Shins family 36
2) Mothers experiences with ASD and EIBI 41
3) Challenges of the child and the mother 46
3. Jays Family: mothers demand for cognitive development 48
1) Characteristics of Jays family 48
2) Mothers experiences with ASD and EIBI 53
3) Challenges of the child and the mother 56

V. Discussion 59

Reference 64
Appendix 70
Abstract in Korean 73
dc.format.extent599030 bytes-
dc.publisher서울대학교 대학원-
dc.subjectautism spectrum disorder-
dc.subjectdisability acceptance-
dc.subjectearly intensive behavioral intervention-
dc.titleA case study of three mothers of children with autism undergoing early intensive behavior intervention-
dc.contributor.affiliation생활과학대학 아동가족학과-
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College of Human Ecology (생활과학대학)Dept. of Child Development and Family Studies (아동가족학과)Theses (Master's Degree_아동가족학과)
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